惯性聚合 高效追踪和阅读你感兴趣的博客、新闻、科技资讯
阅读原文 在惯性聚合中打开

推荐订阅源

小众软件
小众软件
IT之家
IT之家
钛媒体:引领未来商业与生活新知
钛媒体:引领未来商业与生活新知
Security Archives - TechRepublic
Security Archives - TechRepublic
P
Proofpoint News Feed
C
CERT Recently Published Vulnerability Notes
阮一峰的网络日志
阮一峰的网络日志
OSCHINA 社区最新新闻
OSCHINA 社区最新新闻
The Cloudflare Blog
P
Palo Alto Networks Blog
Know Your Adversary
Know Your Adversary
D
Darknet – Hacking Tools, Hacker News & Cyber Security
Cisco Talos Blog
Cisco Talos Blog
L
Lohrmann on Cybersecurity
AWS News Blog
AWS News Blog
J
Java Code Geeks
博客园_首页
Scott Helme
Scott Helme
WordPress大学
WordPress大学
有赞技术团队
有赞技术团队
T
The Exploit Database - CXSecurity.com
Security Latest
Security Latest
V
Visual Studio Blog
Cloudbric
Cloudbric
Jina AI
Jina AI
K
KPMG report finds enterprise disconnect between AI and its ROI | CIO
博客园 - 叶小钗
Apple Machine Learning Research
Apple Machine Learning Research
博客园 - 聂微东
人人都是产品经理
人人都是产品经理
A
Arctic Wolf
C
Cybersecurity and Infrastructure Security Agency CISA
S
SegmentFault 最新的问题
The Last Watchdog
The Last Watchdog
SecWiki News
SecWiki News
cs.CV updates on arXiv.org
cs.CV updates on arXiv.org
W
WeLiveSecurity
K
Kaspersky official blog
让小产品的独立变现更简单 - ezindie.com
让小产品的独立变现更简单 - ezindie.com
Hacker News: Ask HN
Hacker News: Ask HN
cs.CL updates on arXiv.org
cs.CL updates on arXiv.org
freeCodeCamp Programming Tutorials: Python, JavaScript, Git & More
宝玉的分享
宝玉的分享
Hugging Face - Blog
Hugging Face - Blog
量子位
Google Online Security Blog
Google Online Security Blog
博客园 - Franky
Simon Willison's Weblog
Simon Willison's Weblog
博客园 - 三生石上(FineUI控件)
Recent Commits to openclaw:main
Recent Commits to openclaw:main

The San Francisco Standard

Musk vs. Altman: The AI trial of the century comes to Oakland With or without Steve Kerr, how much do the Warriors need their offense to evolve? Sheriff’s deputy accused of beating second inmate in county jail Nima Momeni, convicted of murdering tech executive Bob Lee, wants a new trial Sunset supervisor candidates join forces, targeting incumbent Alan Wong The Valkyries’ Marta Suárez returns: How a former Cal star is embracing the Bay again SF Symphony legend Michael Tilson Thomas dies: ‘Like some great library being burned’ Why empty nesters are flocking back to San Francisco (while they can still afford to) PG&E launches $10 million PAC to take out gubernatorial candidate Tom Steyer Yet another awesome wine bar opens in North Beach. This one’s Croatian The Giants’ Patrick Bailey proves big moments are in his DNA: ‘I’ve had a history’ Six candidates walked into a debate. Nobody walked out a winner Mapped: The top-priority SF streets slated for repair Aella launches AI doom creator residency in Berkeley: Grimes to mentor Yes, Xavier Becerra is surging. Thank the FOXes This North Beach eyesore was about to be torn down — until residents blocked it Opinion: Cartoon: Trump’s Presidio makeover The 18 best events in SF this weekend, from Earth Day celebrations to a dog festival The chicken breast theory of dating ‘It’s disgusting’: Jackie Speier on Swalwell and the toxic culture of Capitol Hill Can Tony Vitello’s Giants put a dent in a one-sided rivalry? A fiery attitude will help Jerry Garcia’s daughter, roadies put Grateful Dead memorabilia up for auction in SF $18 cable car rides, parking meter price hikes: SFMTA approves new budget A very serious investigation into the Safeway paper bag crisis pissing off San Francisco ‘Section 415’ podcast: How the Warriors are approaching a critical offseason Yale University considering San Francisco for satellite campus 4 things to know about SF’s dangerous Crestwood mental health facility The home where ChatGPT was created is for sale ‘It was a wild, dangerous place’: Inside San Francisco’s troubled mental health ward Kawakami: The Trent Williams plan and more 49ers pre-draft positioning Valkyries training camp: Roster battles heat up as Golden State begins Year 2 Japantown is about to cut the mic on this popular karaoke bar Lurie forges music partnership with Shanghai on first international trip First time on market: See inside this Olle Lundberg-designed home asking $22.5M Steph Curry isn’t done yet, but things won’t be the same Is Trump blowing up the Presidio? Here’s everything we know about his plans How a little-known founder is trying to change Calif. politics — to the tune of $1 billion Behind the scenes with Tosh Lupoi: Why Cal’s new football coach was made for this job Inside the 49ers’ special teams overhaul, and why there’s still room to improve Before dawn, SF gathers to remember the earthquake that made it Kawakami: Did Steve Kerr just say goodbye to the Warriors? The Warriors’ season fizzles out with a play-in loss to Suns, tipping off a seismic summer She was killed in the street. Then her reputation was put on trial Paul Toboni grew up on San Francisco’s baseball diamonds. Now he’s a Giants foe SF is so expensive, even doctors are working AI side hustles San Francisco’s latest housing crisis for the ultra-rich? A ‘mansion shortage’ The start of TonyBall? How a wake-up call can help the Giants find their edge Kawakami: 5 thoughts on the Warriors’ potential hangover game in Phoenix Saikat Chakrabarti can’t stop talking about AOC. In a new interview, she ghosts him SF has a measles case. Here’s what you need to know Duo accused of shooting at Sam Altman’s house are freed; no charges filed Why the Warriors’ rowdy play-in win could be a ‘preview’ of more for Kristaps Porzingis Controversial leader of powerful SF political group steps down Lurie-aligned nonprofit offers $25M to help businesses move into downtown First poll after Swalwell exit shows ‘impressive’ swing to Becerra for governor Post-Swalwell Democrats push for consensus. Plus: Was London Breed passed over for job? SF schools’ reading reform is failing. An expert tells us why — and how to fix it A James Beard-recognized pastry chef makes a quiet comeback in the Dogpatch Behind the heart of a champion, the Warriors keep their season alive Kawakami: A Warriors win for the ages — this isn’t over until Steph Curry says so Former AOC staffer has spent $5M to succeed Pelosi — with more to come San Francisco has gone YIMBY. Progressives are scrambling to protect their wins A royal pain: How a British real estate empire is quietly quitting San Francisco Is Claude down? There goes my day The 20 best events in SF this week, from 4/20 celebrations to art fairs SFUSD’s strategy for missing its education goals? Delaying the due date ‘This is really serious shit’: OpenAI policy czar thinks ‘doomers’ are playing with fire Ronan Farrow on Sam Altman’s ‘pattern of deception’ and Silicon Valley’s ‘culture of hype’ From Snapchat to stardom: Meet the best friends who are the future of Bay Area soccer The $30 lunch is a new reality we have to learn to swallow Altman Molotov cocktail suspect was in ‘acute mental health crisis,’ lawyer says After a curious draft-day trade, Valkyries fans deserved a better explanation ‘Section 415’ podcast: Which levers can Buster Posey pull to spark a Giants turnaround? Swalwell ends campaign for California governor amid sexual assault allegations Steyer may surge in governor’s race, courting Swalwell base. Plus: Alameda DA weighs in Sam Altman’s house targeted in second attack; two suspects arrested How All-Star addition Gabby Williams fits the Valkyries’ long-term plans The surprising reason anti-Asian hate is going unpunished He arrived in the U.S. with $100. Now his family feeds the Warriors OpenAI wants a New Deal for AI. An attack on Sam Altman’s home made it urgent ‘Bum in SF’ influencer on voluntary homelessness ‘Where there’s smoke, there’s fire’: In Swalwell’s backyard, support is running out Trump ousts all six Biden-appointed Presidio Trust board members How Republicans plan to make Swalwell a liability for Democrats Swalwell denies sexual assault allegations as Manhattan DA opens probe In a play-in tournament dress rehearsal, alarms ring for the Warriors PST: San Francisco vs DC: In the AI age, who really runs the world? Attack on Altman home prompts new fears: Is the AI backlash getting dangerous? 49ers mock draft: The best (and most realistic) options for all six picks The best Bay Area food town you’re not going to Is that moon photo real? How to spot Artemis II AI slop ‘We’re in really crazy territory’: Swalwell bombshell could upend the governor’s race Swalwell’s support collapsing after sexual assault allegations surface Rivals, Pelosi urge Swalwell to drop out of governor’s race amid assault accusations ‘Section 415’ podcast: Can the Warriors provide their fans with a play-in surprise? Swalwell accused by women of sexual assault and rape Cartoon: Pelosi discovers the virtues of term limits The case for the 49ers to trade their first-round draft pick Suspect in Molotov cocktail attack on Sam Altman’s home identified The Bay Area soccer star traveling 5,000 miles for a home game
UCSF has a $809M surplus. Its ER has the worst walkout rate in SF
Jennifer Wadsworth · 2026-06-25 · via The San Francisco Standard

As a lifelong liver transplant patient, Kelsey M. knows her body the way a navigator knows ocean currents. 

Through frequent blood draws, she tracks a panel of enzymes to see whether the organ is functioning or close to failure. So when results came back in early December — each reading higher than any since she received the transplant as a baby 35 years ago — she knew she needed immediate care. 

The symptoms were telling enough. She couldn’t keep food or water down. She was doubling over in pain. Someone on her UCSF transplant team told her to go to the emergency department at Parnassus. Her records were there, her specialists walked those floors. 

She packed the essentials: enzyme-replacement pills to help her eat, a phone charger, a change of clothes, an N95 mask.

Four hours later, she was in a bed and hospital gown, fluids flowing through a port in her chest. But she was in a shared room, with only a curtain separating her from someone on a breathing machine, battling an apparent respiratory illness.

What might have been uncomfortable to other patients posed a grave threat to Kelsey. Since she was only months old when she got a new liver, she was too young for live vaccines before the surgery and too immunocompromised after to ever receive them. 

When the man on the other side of the curtain started coughing, she stepped out of the room. 

“A nurse said, ‘You can’t be here in the hallway,’ and I said, ‘I can’t be in the room with this guy.’”

The nurse brought her a chair, saying there were no beds and the hospital was full. A transfer to another facility was the only option. A doctor told her she could die if she left; she felt she could die if she didn’t. 

“I was too scared to stay,” Kelsey said. 

Against medical advice, she walked out. 

Rare patient, common ordeal

Kelsey, who asked to withhold her surname, is a medical anomaly. 

As an infant transplant patient who came off anti-rejection drugs at 16, she’s rare living proof that the immune system can accept a new organ without medication. That made her valuable to researchers. A UCSF-led clinical trial (opens in new tab) recruited her last year to try to understand why. 

At the Parnassus emergency department, though, she’s one of thousands each year who walk out before being evaluated or treated by a licensed provider.

UCSF Health officials have maintained that the problems at its flagship emergency department aren’t unique to Parnassus. To a degree, that’s true (opens in new tab). A 2023 study in the Journal of the American Medical Association documented a decade of statewide deterioration: numbers of emergency visits rising, emergency rooms closing, severe cases surging.

A person wearing blue pants walks toward a “Staff Only Entrance” door, with yellow bollards nearby and signs indicating emergency entrance and patient loading.
Workers in the emergency department say the long wait times and high walkout rates are a result of understaffing and crowded conditions. | Source: Manuel Orbegozo for The Standard

Still, Parnassus stands apart on several measures. As a quaternary referral center (opens in new tab), the facility exists to treat patients too sick or complex for anywhere else, operating as the last stop for the rarest, most complicated cases. 

However, publicly reported data show that emergency room patients in Parnassus are increasingly likely to wait longer for care, or to simply walk out without seeing a doctor, compared with other hospitals in San Francisco. Patient complaints at the hospital are five times higher than the state average. 

State records analyzed by The Standard show that the Parnassus emergency department logged the highest walkout rate in San Francisco last year: 5.6% of patients left without seeing a licensed physician. In 2025, 2,243 people left, up 4.6% from 1,872 in 2024, while patient volume continued to hover around 40,000 annual visits. 

Source: California Department of Health Care Access, CMS. 2025 data preliminary. *St. Francis Memorial and St. Mary's SF are now part of UCSF Health, operating as UCSF Health Saint Francis and UCSF Health Stanyan Hospital respectively

A few miles southeast of the hilltop campus, Zuckerberg San Francisco General Hospital runs the busiest emergency department in the city. It’s the city’s only Level I trauma center, a hospital of last resort for the most acute cases, and a safety net facility for patients without insurance or primary care.

But after more than a decade of struggling with the highest walkout rates in the city, driven by a surge in drug-related admissions, SF General managed to turn things around. It slashed walkout rates from 7.6% to 3% between 2024 and 2025  — even as emergency visits grew from roughly 61,000 to 64,000.

In other words, SF General, with nearly 50% more patients and a fraction of the budget, has improved. Parnassus, with a growing surplus, expanded systemwide capacity, and steady demand, got worse. 

A longer comparison is difficult because both hospitals failed to report their walkout data to the state several times over the past decade. 

Source: California Department of Health Care Access. National average ≈ 2% (CMS). 2025 data preliminary

One problem at Parnassus is a lack of space. Patients waiting to be put into inpatient care routinely take up emergency beds because there’s no room elsewhere. That means the emergency department, which for many is a front door to the rest of the hospital system, is often clogged up exactly when people need it most. 

The so-called boarding crisis, in which admitted patients take up emergency beds because there’s no room elsewhere, is a nationwide problem that requires a long-term solution. To that end, UCSF is building new facilities as part of a $4.3 billion expansion (opens in new tab) that will increase emergency capacity at Parnassus by more than 70%. But completion is a few years away.

Have thoughts on this story?

Those billions are visible in the cranes that tower over the existing emergency department — a yellowed exterior that patients and clinicians say mirrors the neglect inside.

Unions representing resident physicians and nurses at the Parnassus emergency department say there’s a staffing crisis — and not due to a lack of resources. From 2023 to 2025, UCSF Health swung from a $116 million deficit to an $809 million surplus (opens in new tab) — even as it bought two hospitals, slashed emergency nursing shifts nearly in half, and left 200 nursing positions unfilled systemwide.

Suresh Gunasekaran — who became CEO of UCSF Health about a year before it bought St. Francis and St. Mary’s hospitals — framed the acquisition in an open letter (opens in new tab) as a solution to one of the biggest challenges: “limited capacity to serve patients who seek our care.” The 500 additional beds, he wrote, would tide UCSF over until the new Parnassus Heights campus gets built.

Yet three years later, the Parnassus emergency department —  the entryway to the UCSF system for many of those patients — remains a chokepoint. 

‘It’s morally distressing’

When Dr. SatKartar Khalsa walks through the Parnassus emergency department on a shift with scores of people in the waiting room, they see things that make no sense. Empty rooms. Unoccupied beds. Idle equipment. 

The emergency medicine resident and regional vice president of the Committee of Interns and Residents — the nation’s largest union of doctors-in-training — said that’s because of a dramatic staffing shortfall. A department that once assigned 19 nurses per shift has operated with as few as 11 since last year. Because California law requires hospitals to maintain a ratio of one nurse for every four emergency patients, the staffing cuts mean people are left waiting even when there’s technically enough room to put 50 of them on beds and gurneys. 

The nursing shortage also means patients don’t get medications in time. Khalsa and their colleagues evaluate patients and figure out what tests need to be ordered, but only nurses can administer medicine.

A person dressed in black with a blue headband stands with arms crossed on a rooftop, city skyline and cloudy sky visible behind them.
Dr. SatKartar Khalsa, an emergency medicine resident at UCSF Parnassus and a regional vice president for the Committee of Interns and Residents, continually faces patients in pain without the resources to help them. | Source: Manuel Orbegozo for The Standard

“It’s morally distressing,” Khalsa said. “I’ve taken care of many patients who’ve been waiting for their medications for up to 12 or 13 hours. It’s heartbreaking to see them in pain, or to see people who have complex diseases coming to what is regarded as one of the best hospitals in the country, only to end up lying on the waiting room floor.”

For patients who make it past triage, the experience often doesn’t improve. They end up in hallways, in curtained areas, and in other spaces not designed for the conversations that follow.

Friday, May 29

A stack of hundred-dollar bills arranged in the shape of California casts a shadow on an orange background.

Friday, May 22

A stack of gold bars wears a black graduation cap with a red emblem featuring a white tree and two interlocking "S" shapes.

Friday, May 15

Five orange silhouettes hold boxes against a blue and white background featuring the Meta logo and partial text.

Dr. Gloria Tavera, a second-year gastroenterology fellow at UCSF, said she routinely discusses sensitive health issues with patients in the open waiting room. “I have to ask them about their bowel habits, their poop, maybe about stool incontinence in front of all these other people,” she said. “There’s no sense of privacy or dignity in that situation.”

Jaclyn Oppedisano, a researcher and clinical nurse at UCSF, said she witnessed an end-of-life conversation that took place in a hallway. “Family, patient, multiple doctors at the bedside, discussing the end of life, next few hours or days in a busy place with people screaming, floor-cleaners going by, and dinner trays being put out,” she said. 

Residents and fellows hold signs saying “While you’re stalling we’re saving lives” in front of a screen demanding space and staffing in the emergency department.
As it negotiates a new contract, the Committee of Interns and Residents held a series of rallies demanding more staffing in the Parnassus emergency department. | Source: Courtesy

A nurse at Parnassus responsible for coordinating assignments and supervising staff said the sharp drop-off in nurses available during each shift is due to a “demand staffing model” implemented by hospital leaders as an efficiency measure. 

The system uses historical patient counts to determine future staffing. However, it fails to take into account the number of people forced to receive care in waiting rooms and hallways.

“You could have 50 or 60 patients in the waiting room, which I have seen, and that still doesn’t change the number of nurses we’re budgeted for,” said the nurse, who asked to remain anonymous because of potential retaliation. 

In perhaps the most damning indictment: Not one Parnassus emergency clinician interviewed by The Standard said they would send a family member or loved one to their own emergency department.

UCSF didn’t respond to detailed requests for comment. 

But hospital officials have publicly denied claims of personnel shortages, telling Mission Local (opens in new tab) in mid-May that the emergency department is “appropriately staffed.” Officials said a plan to “align staffing with patient demand” would launch this month. Sources at the hospital say they are still waiting for implementation.

‘They deserve better’

Andrew McLester couldn’t have walked out if he tried. 

The 49-year-old Outer Sunset resident showed up to the Parnassus emergency department one afternoon in March after a surfing accident left a deep gash behind his left knee. The fin of his board had pushed the neoprene of his wetsuit a half inch into his flesh. Nurses immediately put him on morphine and placed him on a gurney in a hallway.

For six hours, he lay there as doctors and nurses stopped to look. “Have you seen this wound?” he recalled them saying to one another. “Wow, you have to see this.”

He kept waiting for someone to tell him what was happening. Occasionally, nurses let him know that they were looking for the right person to treat him.

A hospital building with a red “EMERGENCY Entrance and Drop-Off” sign, a blurred campus map labeled UCSF in the foreground, and people walking nearby.
UCSF is building new facilities as part of a $4.3 billion expansion, but workers say the current ER is cramped and suffering from neglect. | Source: Manuel Orbegozo for The Standard

At midnight — eight hours after he arrived — a surgeon walked over and said, “I’m going to stitch you up and get you outta here.” Right there in the hallway, in what McLester described as dim light, the doctor sewed 28 sutures in a mesh pattern. McLester was discharged at 2 a.m.

“It was the gnarliest experience of my life,” he said.

Thirteen days later, the wound began to discolor. He went to his UCSF primary care physician, who was uncertain how to remove the meshed sutures and had to consult a specialist by text. The wound worsened. Antibiotics were prescribed. A few mornings later, McLester woke up unable to walk, his leg turning dark purple. He went back to the emergency department.

This time, an MRI, an ultrasound, and a CT scan revealed what had gone wrong: an infected pool of blood had gathered beneath the flesh, unable to drain. Two weeks after his original visit, he went into septic shock. He was rushed into surgery. 

Physicians reopened the wound, cleaned it, and installed drainage tubes. He was discharged three days later and told to pack the wound with wet gauze twice a day. 

The surgeon who performed the second operation told McLester what should have happened the first time. He had what surgeons call a “dirty wound” — a laceration driven by impact and contaminated by seawater, not a clean cut. A trauma specialist would have recognized it and left it open to drain for at least a week. That single judgment call, McLester was told, would probably have healed the wound in weeks rather than months. .

Instead, McLester spent more than 100 days recovering. He couldn’t work for much of that time, and as an independent wine wholesaler will feel the impact of that loss for a year or two to come.

In a grievance filed with UCSF patient relations, he made a point of not blaming the nurses or doctors. “I’ve never met a group of more caring and committed individuals than the nurses and staff at the ED Parnassus in all my life,” he wrote in his complaint letter. “They work so dang hard through so much insufficiency and higher-up malfeasance. Like me, they deserve better.”

After his persistence appealing a $150,000 bill — the cost of care tied to what he described as botched treatment — UCSF forgave the debt.

Overnight wait, no answers

Walkout rates are one bellwether. Wait times tell a parallel story. 

According to the most recent data from the Centers for Medicare & Medicaid Services, the median time a patient spends in the Parnassus emergency department is four hours and 18 minutes. That’s nearly double the national median of two hours and 41 minutes, and the second-longest wait of any San Francisco hospital. Only SF General — which handles the most acute trauma cases and sees about 60% more patients a year than Parnassus — reports longer times, at five hours. 

Source: Centers for Medicare and Medicaid Services, 12-month period ending June 2025. ZSFG's longer time reflects its role as the city's only Level I trauma center. *St. Francis Memorial and St. Mary's SF are now part of UCSF Health, operating as UCSF Health Saint Francis and UCSF Health Stanyan Hospital respectively

As a caregiver to a few aging family members, Julie Mayer has spent a lot of time in emergency rooms. Her 91-year-old mother and 96-year-old uncle require frequent medical attention, and she splits her time between her home in San Francisco and their homes in Florida, where she manages their hospital visits. She has been to emergency departments in three Florida hospitals and to facilities across the Bay Area. 

Nothing prepared her for the night she spent at Parnassus.

It was a weeknight last month, and she was caring for another family member who had noticed a large black spot obscuring his peripheral vision on both sides. He had consulted a telehealth doctor, who suggested he might be having a stroke. He took an Uber to Parnassus because he assumed it was the best hospital in the city.

He arrived around 9 p.m. and was quickly triaged. That was the last efficient moment of the stay.

Over the next several hours, he was seen in a hallway or some liminal space. Hallways at the Parnassus emergency department are often crowded with patients in beds. However, many have not been officially admitted and have not yet received care from a licensed provider; they are simply too sick to wait with others.

As Mayer waited with her relative throughout the night, she saw people suffering. A man slumped unconscious across chairs, another vomited into a bag, a third puked up blood. A pregnant woman with abdominal bleeding got admitted pretty quickly, but a man with appendicitis kept getting sent back to the waiting room.

By 7 a.m., Mayer and her relative couldn’t take it anymore. When they told a doctor they were leaving, another came out to try to persuade them to stay. They left against medical advice. Results from tests taken at the ED didn’t post online until a day later. They included no analysis. 

“I don’t know what the problem is,” Mayer said. “In Florida, you check in, they send you to triage, and, pretty quickly, you get a room. You might wait, but not for all those hours, and at least you’re in a private space.”

Hard-won lessons

Two days after leaving against medical advice, Kelsey was still in pain. 

She tried to manage it at home — soup, Boost shakes, mashed potatoes — but her liver panel readings weren’t improving. She still couldn’t keep down water. She was still doubling over. She decided to head back to Parnassus. Only this time, she knew better than to go during the emergency department’s rush hour. 

She had done the calculus before. Leave home at 1 a.m., arrive before the morning shift change turns the nursing stations into ghost towns. Never on a Friday. Never on a weekend. Never during the day. Make sure medications are administered before the handoff, or you may not see a nurse for an hour or more. 

A woman in a blue hoodie leans on a black metal railing with trees, greenery, and a concrete building in the background.
Though trial and error, Kelsey has developed an internal formula to figure out when she will get timely treatment at Parnassus. | Source: Amanda Andrade-Rhoades/The Standard

This time, she was triaged in less than 30 minutes and quickly given Dilaudid for the pain and hydration through her chest port. Then she was transported by ambulance to another hospital, where she spent a week recovering in a private room. 

Just as she spent a lifetime studying her symptoms, she has spent several years figuring out how to survive the place that’s supposed to take care of her. And since she requires emergency care five to six times a year, she has become a reluctant expert. 

“I don’t really have a choice,” she said. “It would be nice if I didn’t have to know all of this.”